Parents' request for terminally ill little boy to die at home refused

European court sentences UK infant to die

Parents' request for terminally ill little boy to die at home refused

Chris Gard and Connie Yates, parents of 10-month-old Charlie Gard, made the plea to the European court to allow them to take their son to the US for an experimental treatment.

The parents of Charlie Gard have been fighting for his life much of his short, devastating life. They are not permitted to take him home, and they say that the hospital is "rushing" to turn off the ventilator.

Charlie's parents even had set up a crowdfunding page to raise money for the treatment and they have collected £1.4million for the United States treatment which is being denied to Charlie even by the court itself.

Charlie's case has gained attention online, raising almost 1.4 million pounds ($1.8 million) on GoFundMe to send him to the U.S. Please respect our privacy while we prepare to say the final goodbye to our son Charlie'.

Charlie, who was born on August 4 a year ago, is one of few people who suffers from a very rare mitochondrial disease that saps energy from organs and muscles. Earlier this week, UK couple Connie Yates and Chris Gard lost their final appeal to keep their irreversibly brain damaged baby alive via life support and (possibly) experimental treatment in the United States.

"Not only are we not allowed to take our son to an expert hospital to save his life, we also can't choose how or when our son dies", said Connie Yates, Charlie's mother, The Daily Mail reported.

Nine-month-old Charlie Gard was due to be moved to palliative care at midnight on Wednesday, the BBC reports, but the Supreme Court has ordered that he remain on life support until the court sits to make its decision on 8 June.

The case concerned Charlie Gard, a baby suffering from a rare and fatal genetic disease.

Charlie's parents raised over £1.4million in private donations via GoFundme to pay for the treatment and their travel expenses. The courts sided with the doctors and hospital administrators each time.

A Great Ormond Street spokesperson stated that there is "no rush" to end Charlie's treatment.

However, Gard and Yates are claiming that they are being rushed and that the hospital has denied their request to allow the baby to die at home. We can't even take our own son home to die.

In a turn of events, however, doctors at Great Ormond concluded that nucleoside, which was not created to cure the disease, will not improve baby Charlie's condition. Specialists have said the proposed therapy wouldn't help Charlie. We and most important Charlie have been massively let down throughout this whole process.

Mr Justice Francis said that withdrawing life support was in Charlie's best interests, adding that he made the decision with the "heaviest of hearts".

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